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Organ Transplant Discrimination: Gracie’s Law

Our Jewish Abilities Alliance (JAA) team and other community advocates were down at GA State Capitol last week to support Gracie’s Law (HB 842), organized by Georgia Council on Developmental Disabilities. The law seeks to end organ transplant discrimination against people with a diagnosed developmental disability, based on many misconceptions about their quality of life and ability to recover from a transplant. It’s named for Gracie Nobles, who was born in March 2019 with Down syndrome. Gracie spent 17 days in neonatal intensive care, then a month later, she showed signs of congestive heart failure and developed serious kidney problems.

At 3-months-old, Gracie underwent surgery to successfully repair a hole in her heart. But, if Gracie had required a heart transplant, she could have been denied due to her diagnosis. Georgia doesn’t have discrimination prevention laws to protect people with disabilities and ensure equal access to organ transplants. Even states with discrimination laws often leave people and children with disabilities off organ transplant lists. We’ll keep you posted on the bill’s progress! Learn how to advocate with JAA for Gracie’s Law here.

How Friendship Circle Inspired Me

By Daniel Stern

I was still a freshman at The Weber School when my older sisters suggested it was time I took part in Tikkun Olam (repairing the world). It was at this point that I decided to volunteer with Friendship Circle’s “Buddies at Home” program. I signed up and became a buddy to a young adult with special needs named Mike. Mike and I met nearly weekly, as our schedules permitted, and we had so much fun hanging out, playing sports together, going to the dog park, having lunch, and things like that. It was a great relationship.

By the time I was a sophomore, I began to think about creating a one-week summer day camp for people with disabilities modeled on Friendship Circle, where every camper has a “buddy.” I was really pumped to do it, but I did not have a plan set in stone. My mom said, “Go for it, but, remember, this is your project, not mine.” I went to the Sandy Springs Tennis Center and asked them if they’d donate a couple of tennis courts, and they said OK. I was excited to launch what I was then calling “Serve it Up” Summer Camp, but pretty soon it dawned on me that I needed a little backup. I wanted it to be a free camp to encourage all who wanted to participate to attend. I knew I needed to raise money and I knew I needed my friends to help pull this off. I launched a Go-Fund-Me campaign online that raised over $1,000 for us to get started.

I worked with Rickelle New, the Director of Friendship Circle, and I created the tennis program and she created the arts and crafts program. We developed a flyer and reached out to all of the families that had participated in Friendship Circle activities. Recruiting my friends to become buddies for our campers was the next challenge, but eventually more than 20 of my friends signed up to volunteer. It was a great success to be outside playing tennis with our special friends. So, the following summer, I was excited to create another camp. We decided to move the camp indoors to the gym at Atlanta Jewish Academy, so those who did not want to be outside all day could also participate. That summer, we played many sports in addition to tennis and still included arts and crafts. Many of our campers with special needs even had two buddies! I learned that many people with disabilities have other health issues. They can’t take the heat and need the comfort of air conditioning.

I really thought I was doing this for kids with special needs. But, when the parents of these kids came up to me and told me how much they valued the camp, it felt so good. I realized that not only did the kids benefit, but their entire families benefited from what we had created. So did my volunteers. Now, as a freshman at Vanderbilt University, with the benefit of hindsight and a little maturity, I can see I was also doing it because of the values I learned in my family, at school, and through Friendship Circle. When you help others and build real relationships, you are doing the work of tikkun olam.

Mental Health Responder Toolkit

Imagine if more people re-thought mental illness as a quest for mental and spiritual wellness. Imagine if more people had the tools to understand, support, and overcome the shame, stigma, and challenges of substance abuse. Now, with support from a Federation Innovation Propel grant, Atlanta-based Blue Dove Foundation is moving in exactly that direction, addressing issues of mental illness and substance abuse through a compassionate Jewish lens. Blue Dove works locally and beyond to educate, equip, and ignite our Jewish community with tools to understand mental illness and substance abuse and connect them with the right local resources, such as professionals from JFC&S. They are in the midst of creating a Mental Health Toolkit packed with resources and written by local rabbis and health professionals, to increase understanding and extend hands of healing.

Blue Dove’s Toolkit begins by articulating Jewish mental health values and defines the key issues that individuals and families struggle with. For example, the concept of b’tzelem elohim — to be created in the divine image — suggests that any conversation about mental wellness must begin with a foundation of dignity and respect. This can counter the shame of illness and the tendency to hide from conversations around mental health.

Or, refuah shleimah — healing and wholeness. Judaism recognizes that healing is not just physical; it is holistic. When we pray the misheberach for healing, we pray for refuat hanefesh v’refuat haguf, a healing of spirit and of body. The Jewish emphasis is also on healing, not on curing. Even when mental illness is under control, healing and a return to wholeness are in order. We see healing as a process, one that has many components and may be a lifelong journey.

The Toolkit will also provide a comprehensive list of local resources to recognize, respond, and set people on the road to healing.  The hope is that people will become more comfortable talking openly about mental health, mental wellness, and illness. Learn more at Blue Dove Foundation.

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